Back To Square One.

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My god it has been for ever! And oh my has life been taking me from one end to another…

Let me start by apologizing for disappearing into thin air after my last post of me being absolutely chuffed about feeling lots and lots better and thoroughly believing I had been cured once and for all… you may already sense what’s coming…

The pain is back — in all its glory and almightiness… (I know it’s not a word, I think… god! relax).

     ‘Bit by bit the pain weaseled its
way back in to my daily routine until I caught it red handed taking over my life again; terrorizing my every move…’

You might’ve even seen some pictures of me looking like I was having the time of my life — I was, I really was enjoying a life with almost no pain and feeling the power of having control over my life again.

But then it all came back, bit by bit the pain weaseled its way back in to my daily routine until I caught it red handed taking over my life again; terrorizing my every move… and well, call me crazy, but after sharing with you my success of feeling so much better I just couldn’t find the words or courage to share with you this major disappointment. I just couldn’t. And a big part of me was obviously wishing it would just be temporarily and the ‘painfree’ times were just around the corner again. But after waiting and wishing for a long time I just have to admit to you and myself. The pain is back.

I have been taking my meds and been to all of my regular checkups at the hospital. In the meantime I’m trying to hold down a steady job which is very challenging considering the state I’m in most of the time. I’m trying to do all the right things to prevent the pain from getting worse and more powerful but it feels more like carrying water to the sea.. that might not even be a saying in the English language but I’m throwing it in here anyways.

I’ve been prescribed new drugs almost every month or so and every time I would cross my fingers hoping these new pills would give me my freedom back. But up until this day that hasn’t been the case. And although this sounds and ís rather depressing I must admit I could’ve taken it worse and my life isn’t all that bad… some moments it is, being in pain still feels like running a marathon, on one leg, every day. But I’ve met a wonderful person who wants to share his life with this curled up little bundle of pain called ‘me’. So even though I’m angry and unbelievably disappointed about being ill, I do enjoy life and whatever I (we) can make of it.

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I’m very thankful of this wonderful human being, standing beside me, being all tough and strong. He’s there when I’m feeling a bit better and we go paint the town red! But more importantly he’s there when I’m all down in the dumps because I’m in pain. Thank you for sticking by me even though you barely know me. (insert monkey face hiding behind its hands).

On a more chipper note; look I have a car! Still no drivers license though haha but we’re getting there!
But look how cute! I’m totally and utterly in love with it and can’t wait to be huffin and puffin around in this one. Fingers crossed it will not disintegrate on the motorway 😉

Thank you for checking in on me, feel free to leave a massage!

If it’s been a while since we spoke or saw each other please don’t hesitate and drop us a text or fb message and we’ll go for drinks! Maybe not for large pints of Guinness but catching up  over a hot cup of tea works just as well:) god when did I become so English…

Haha Ok. Doei!

PS. Mocht je je nou afvragen wat mijn ziekte beeld precies inhoud heb ik hier een mooie/deprimerende opsomming van symptomen. Dit doe ik natuurlijk niet om zielig te doen maar wel om awareness te brengen voor MCAS, en mocht je jouw klachten nou hierin herkennen neem contact op met je arts! Ook mij mag je alles vragen!

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A Little BellyGirlBlog Update

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Hi Lovely People!

It’s been a while, and unfortunately that’s not a good thing, it means there is too little improvement to write about:(. I still wanted to give you a little update on how I’m doing and my new medication; you never know it might help you or someone you know with any similar problems.

Yes you could go to a doctor and tell them your story and ask them for help. They will start by going down a checklist to exclude any severe illnesses and when blood tests show nothing they will send you home with a poor excuse called IBS (irritable bowel syndrome). You might just have just that, but when nothing helps and no diet makes any difference… doctors will send you from place to place but won’t actually know what the hell to do with you.

When you’ve tried it all and normal protocol tests won’t show any abnormalities, you’ve come to the right place my friend… well, I don’t have THE answer (yet) but I have already tried so many “non protocol treatments” (this is probably very bad English), one of them might just be THE ONE for you! (if this is your first visit on this blog; have a look at my other ‘belly issue’ related posts to see if it might inspire you to try new treatments or diets.

This blog post I will talk a little about my two new sorts of medication and supplements I take every day and have made a significant difference even though the bad days still win it from the good ones. I will list it all down below and elaborate underneath in NL and EN.

1. Nalcrom 200 mg (natriumcromoglicaat). Antihistaminicum
2. Zaditen 1 mg (ketotifeni fumaras). Antihistaminicum direct.
3. Enzymen Complex (merknaam: NOW). Enzymen voor vertering/for digestion.
4. 1130 Betaine & Pepsine. voor extra maagzuur voor betere vertering/for extra gastric acid.

(NL)
Nummer 1 en 2 zijn antihistaminicum en helpen mij bij elke maaltijd zodat ik een verminderde reactie krijg op eten, jup welleenswaar elk soort eten. Nalcrom heb ik in de vorm van een zakje poeder en los ik op in 200 ml water en neem ik in 15-20 minuten voor elke maaltijd en voor het slapen. De Zaditen heb ik in tablet vorm en neem ik elke ochtend voor het ontbijt in en elke avond voor het avond eten.
Nummer 3 en 4 zijn voor mij van belang voor een goede vertering en opnamen van voedingsstoffen, deze neem ik in met water TIJDENS de maaltijd.
Ik ben geen dokter dus ik ga niet te veel lullen over wat het allemaal precies inhoud en wanneer je dit nodig hebt. Heb je het idee dat deze middelen het proberen waard zijn, vraag het na aan je dokter en Google er eerst eens op los en kijk ook naar ervaringen van andere mensen mbt het desbetreffende middel. Nummer 3 en 4 kun je in Nederland kopen bij www.derooderoos.nl en heb je geen doktersrecept voor nodig.

Mijn ervaring.
De eerste dag dat ik de twee antihistaminicum nam voelde ik al meteen verschil. Ik had minder last van krampen boven in mijn buik en de pijn kwam pas veel later en de heftige (aanval) pijn nam ook af. Ik heb nu helaas een hele wisselende reactie op eten en weet niet wanneer het goed gaat en wanneer fout. Toch heb ik het idee dat de Nalcrom en Zaditen wel helpen en de klachten over het algemeen, en dus globaal gezien, minder worden. Het is dus geen aanhoudende stijgende lijn maar meer een stijgende op en af lijn… wauw iris wat mooi beschreven… maar je snapt ‘m.
De Betaine&pepsine en Enzymen hebben totaal geen effect op de pijn en doen voor mijn gevoel weinig, maar zorgen ondertussen wel voor een betere opnamen van voedingsstoffen en een betere vertering. Dit resulteert in een iets hoger energie level en verbeterde bloeduitslagen. Al deze 4 middelen kunnen absoluut geen kwaad als je het bijvoorbeeld niet per se nodig hebt, dus proberen kan altijd! Nummer 1 en 2 worden door je verzekering vergoed en nummer 3 en 4 niet.

(EN)
Number 1 and 2 are antihistamines and prevent some of the severe reactions I have on food, any kind of food. I take the Nalcrom in the form of powder and dissolve it in 200 ml of water about 15-20 minutes before every meal and before going to bed. The Zaditen I have in the form of tablets and I take them before breakfast and dinner.
Number 3 and 4 are supplements and help me digest my food better and make sure I absorb more nutrients.
All four of these will not do you any harm when taking them if not completely necessary. Google them and search for peoples’ experiences with the products when you’re not completely sure, also discuss it with your doctor or nutrition. Number 1 and 2 you need a doctors’ prescription for and will most likely be covered by your insurance. Number 3 and 4 are available for purchase here in Holland on this website: www.derooderoos.nl
If you don’t live in Holland just Google it and you will most likely find a website that will have these supplements.
I’ve had a very positive experience with the antihistamines and could feel the difference in matter of hours. The pain now is fluctuating really badly and even though I sometimes don’t benefit from my medicine it has kept me from taking painkillers for over a month. Tiny little victory for ya there;). Number 3 and 4 don’t really do much pain-wise but they help me digest my food better which is also very important.

I’m still going to my chiropractor three times a week and these 5 minute visits can be quite invasive, sometimes it reliefs me from pain sometimes it causes a very severe reaction, DON’T WORRY, it’s all part of the process!

I hope you liked my little update that grew into a rather lengthily one haha. If you have any questions or suggestions leave me a message on here or Facebook or email me on irisgerits@gmail.com.

 

I’m also currently making some new beauty bags! They will be online and available for purchase this Sunday. All the BGB bags will be on sale for Christmas!

I send you lots of love and Christmas joy!!

X Iris.

Belly Blues

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We all have those moments where our belly isn’t cooperating with us and it’s always in the most inconvenient time. Maybe you just had a rough couple of weeks at work or it’s the end of some holiday season and you’ve been eating all the naughty foods. No problemo! Most people just need a few days of healthy eating and a few good nights of sleep to get everything right back on track and get rid of some much hated bloatiness (I know that’s not a word;) or indigestion.

If you get stuck with the cramps and the bloated belly for longer than just a few weeks we automatically start to change bits and pieces in our eating or living habits, no one wants the uncomfortable feeling of an upset belly for too long.

I’ve been living with an upset belly since I was about eight years old, the pain has come and gone over the years and had its peeks around stressful times and its lows anywhere in between. As you probably know or already read; for me the past 9,5 months the pain has been unbearable and I’ve been searching for a miracle ever since. Finely this “miracle” has been presented to me but the pain is nowhere near gone. It takes time to fix my particular issue, but maybe your solution is right around the corner and ten times easier. I’ll just give you a few examples of what you could try to get your metabolism or any other stomach issues for that matter under control. It sounds a bit counterproductive giving you advise to try methods that didn’t help me, but then again, I am a special case in this scenario;) do take note that if any of these methods are not to any use of yours, ask your doctor to be tested for SIBO, the thing I have, which you can read all about on the ‘about’ and ‘eureka’ page (if you haven’t already).

These methods have been suggested to me by the gastroenterologist at Catharina hospital or my general practitioner in Holland (Eindhoven). I have tried countless other methods but these are the ones I think could be of use to others.
(I hate reading endless long blog stories so I won’t do that to you, I like to get straight to the point. It could be that by making this short and simple you end up with questions about one of the methods or my experience with them, please don’t hesitate and send me an email; irisgerits@gmail.com or comment on this blog post).

1. Fodmap Diet.
For some people it’ll be quite a change but if you find yourself getting bloated after every meal or experience some serious indigestion every time you eat even the tiniest little thing, it’s worth a try and if you don’t experience any improvements after 7 weeks of following this diet, try something else! Click on the next link to get more information about this diet; Fodmap Diet.


2. Peppermint oil (in capsules).
It’s supposed to reset your belly and calm it down from any cramps and other discomfort.

3. Going gluten and/or lactose free.
All I can say about going gluten and/or lactose free is; try it and if it doesn’t change anything try something else! I know, it’s a drag, trying all these different things, but if you’re in a lot of pain you just need to try and try until you find something that helps. Make sure you have been checked by a doctor first and see what he has to say about your symptoms.

4. Magnesium.
My doctor gave me Magnesium supplements to reduce the cramps in my colon. Because my colon was inflamed (at that time no one knew) the magnesium didn’t help but it might help you if you are experiencing frequent cramps.

5. Probiotics.
It’s almost the first thing people try when they have an upset belly. If you had a stomach bug or anything along those lines, your belly can stay a bit under the weather for longer than usual because you may be lost some of your healthy bacteria. Probiotics can get those little suckers back on track and get your metabolism up and running in no time. Again I advise you to just try and see what it does for you.

6. Duspatal.
This is for cramps and pains in the lower abdominal, ask your doctor if he thinks this will be something that might help you, same goes for number 7.

7. Buscopan.
This is a painkiller especially designed for stomach cramps.

8. Acnes treatments at the Maxima Medical Centre (Holland).
This is a whole other story, and a very long one for that matter, I’ll give you a link where you can find more information about this treatment: Acnes MMC. I don’t know if they do this in other countries but in Holland it’s an up and coming treatment for people who are suffering from chronicle (belly) pains. Their approach is more on the nerve level of the belly and not the colon lever. They basically put the main nerve in your stomach to sleep by injecting lidocaine in the first and/or second level of the nerve. if this is successful and you experience less pain over the course of a few hours or days they can eventually cut the nerve in its entirety.

9. Antidepressants and shit like that, don’t let them fool you by letting them convince you the pain is in your head, YES of course stress or anxiety can worsen your symptoms but in no universe can the pain you feel for months on end be because of something that can be cured with antidepressants. All I’m saying is, try The diets and other methods first before you ask your doctor about antidepressants. I’m not saying it might not help some of you, just let it be one of the last things you try.

Thank you for reading this blog, and I hope this might help you on your belly blues journey!

Email me for any questions; irisgerits@gmail.com

 

Happiness♡

For me happiness is the most important thing in the world!
Sometimes life throws so much crap your way you can hardly see the light at the end of the tunnel, but it is there. If you have trouble seeing it just imagine it and it wil be closer than you think;)
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One of the things that make me very very happy at the moment is my new hobby; making my own BellyGirlBlog Beauty bags! I’m still in quite some pain these days so making those bags is a nice distraction. Go have a look at my (still small) Hand Made Collection:).

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I love this time of year!

I’ve had a lovely walk in the autumn sun today and also a little less pain, yay. My new medication is coming over from Belgium next Monday and I really really hope it’s going to make me better, fingers crossed!

~X Iris

HAPPY FEET

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I started a little dog-walking-business a little while ago.

Ik voel me nu eindelijk wat beter vanwege mijn nieuwe medicijnen en daarom kan ik eindelijk op pad met de fijnste viervoeters op aarde!

Woon je in Eindhoven/Woensel(op de hoogte van het Catharina ZH) en heb je ook een energiek blij ding die misschien wel wat vaker uitgelaten mag worden als baaslief van huis is? Neem dan contact op met mij:) Je kunt me mailen: irisgerits@hotmail.com of bellen op 06-19013072. Voor 10 euro neem ik jouw hond mee voor een goeie wandeling naar bijvoorbeeld het Philips de Jong park en zijn we 45 tot 60 minuten weg.

We hebben het allemaal druk druk druk, maar laat je hond er niet onder lijden! Die trouwe beestjes verdienen het beste!